ADRC's can provide comments about they will implement REDCap forms developed by NACC. For example, will your center rearrange the forms to suit the visit flow or will you create different projects to accommodate the visit flow? This information can help NACC designing the REDCap data dictionaries and data submission systems.

@ben - please edit this to match your vision for this Issue

The Cognitive group is interested in collecting the order of recall for the CERAD and RAVLT verbal learning tests for the new C2 Forms. Does anyone have a data entry form used in the center to record the order of recall for these tests? Or would anyone be interested in developing a tool like this?

Hi @avedvyas @haseenaR @mcleod42,
I see on the UDSv4 REDCap forms Smartsheet that Form A2 is in progress and @avedvyas is working on it - it sounds like @mcleod42 also had a version of it. I just wanted to update you that the CTF edited the form slightly and this affected the numbering on the PDF, but not the variables names or the content of any of the questions.

The A2 folder has been updated with the most current version of the PDF as well as an updated variable list/error check list. Please let me know if you have any questions for me about this!

The CTF would really like to have an A5/D2 Health History form that is more interactive. The dream would be a form that displays the responses given from the Previous visit. Then any updates could be made by filling-in new conditions. It could be complicated to build this type of form. Does anyone have some expertise and/or appetite to explore a FVP version of the A5/D2 to accomplish it?

The contributing document had content for adding documentation but needs to be finished for working with forms and tools.

In addition to the Style Guide, we should have some guidelines around which Action Tags/Smart Variables could/should be used and agreed upon either so individuals can develop forms as originally proposed or separate sub-teams can work on different aspects (e.g., variable names team, branching logic team). Thank you @dzemlock123 and @sngothard for the suggestion.

Hi All,
In my work developing the B4 form, I was asked to see about using a calculated field to calculate the Global CDR. I've made quite a bit of progress, however have gotten stuck mostly at the more unusual circumstances section (see below for scoring rules from the guidance document. Unfortunately, at least as I have been told, the algorithm that powers the NACC calculator is considered IP and cannot be shared without being licensed, so I was not able to view that. Regardless, I'm wondering if this is really possible using native REDCap functionality, but since there is so much expertise in our group I wanted to see if others have any thoughts or possible solutions (or possibly already do this in their REDCap instance!). Any thoughts or help on this would be appreciated. Thanks!!

Scoring Rules:
The global CDR is derived from the scores in each of the six categories (“box score”) as follows:
• Memory (M) is the primary category, and all others are secondary.
• CDR = M if at least three secondary categories are given the same score as memory. Whenever three or more
secondary categories are given a score greater or less than the memory score, CDR = score of majority of
secondary categories on whichever side of M has the greater number of secondary categories. However, when
three secondary categories are scored on one side of M and two secondary categories are scored on the other side
of M, then CDR = M.
• When M = 0.5, CDR = 1 if at least three of the other categories are scored 1 or greater. If M = 0.5, then CDR cannot
be 0; it can only be 0.5 or 1.
• If M = 0, then CDR = 0 unless there is impairment (0.5 or greater) in two more secondary categories, in which
case CDR = 0.5.
Although applicable to most Alzheimer’s disease situations, these rules do not cover all possible scoring combinations.
Unusual circumstances that occasionally occur in AD, and may be expected in non-Alzheimer’s dementia as well, are
scored as follows:

1. With ties in the secondary categories on one side of M, choose the tied scores closest to M for CDR (e.g., if M and
   another secondary category = 3, two secondary categories = 2, and two secondary categories = 1, then CDR = 2).
2. When only one or two secondary categories are given the same score as M, CDR = M as long as no more than two
   secondary categories are on either side of M.
3. When M = 1 or greater, CDR cannot be 0; in this circumstance, CDR = 0.5 when the majority of secondary categories
   are 0.

For UDS, we have pushed the XML for the base project that was adapted for NACC from a version of the U.Michigan UDSv3 project.
This file includes some details on licensing and copyright that should be in the final file, but that would be lost in a data dictionary export.

The point of this issue is to request discussion on conventions for REDCap exports:

• Do we want to also include the CSV for the data dictionary when we update the XML?
• How do we support work on individual instruments? (do merges of different versions of the REDCap XML break things?)

Hi @haseenaR and @jhepler I just wanted to notify you that we found a typo in the variable list for A5/D2; INSOM should be INSOMN. I have submitted a pull request to edit the variable list which needs to be approved, but wanted to bring this to your attention since I know you are working on this form in REDCap!

There seems to be interest in using the pre-filled format for UDSv4. We could start by building the COVID forms as a pre-filled version drawing from the previous results to allow only new symptoms to be recorded. The form wasn't exactly designed to work this way, but I think with REDCap we could improve upon the original. Would anyone be interested in trying it? @Jreade89 or @dzemlock123 are either of you interested?

Thanks for considering it!

For example, when creating a descriptive field to display data, we use a suffix of _display in the field name. On follow-up forms, we display the answer to amylpet from prior visits. That descriptive field is called amylpet_display. (Suzanne Hunt opened originally through email - thank you Suzanne!)