Name: EJP RD Pillar 2: Coordinated Access to Data and Services
Type: Organization
Bio: The Virtual Platform aims to open a single door to discover, query and eventually access Rare Diseases resources
Blog: https://www.ejprarediseases.org/what-is-the-virtual-platform/
EJP RD Pillar 2: Coordinated Access to Data and Services's Projects
Clinical And Registries Entries Semantic Model
Repository dedicated to explore workflows for CARE-SM implementation
The code that generates the Dockerized daemon used by CDE-in-a-box
This repository contains software to create and deploy CDEs
This repository contains mappings related to CDE semantic model
Semantic data model of the set of common data elements for rare disease registration
This repository contains implementation artifacts related to CDE-semantic-model
mapping activities dedicated to integrate CDE semantic model with OMOP CDM
Attempt to sort ERNs data dictionaries into domain lists with variables in common
Repository for the Distributed Analysis
book available at
This repository contains information about the document-based FAIR Data Point, i.e., a set of files containing metadata according to the FDP specifications
Ontological mappings (and other mappings) used in the Duchenne Parent Project's PRO(M)s and clinical data observations
A place to announce updates, security alerts, and patches to the FAIR-in-a-Box modules
Swift implementation of the EJP-RD metadata model.
Marks strawman LDP "layers" for the high-level metadata organization
This is meant for checking resources metadata and validating the resources metadata
EJP-specific tests for the FAIR Evaluator
This is a compilation of all the guidance for the FAIRification process developed or suggested within the EJP RD
A proxy for the /catalog Beacon endpoint in order to query FAIR data point metadata
Populate FDP with content via github actions
A record of the process for configuring the Reference Implementation of the FAIR Data Point (the one that is included in FAIR-in-a-box) for use on the EJP-RD Virtual Platform
FAIR IN A BOX
Semantized flash cards use case